I aim to help patients advocate for their preferences and needs in healthcare and enable better clinicians-decision support systems interaction.
BioScholar: Investigating how clinicians use literature as explainable decision support
Complex algorithms and data-intensive predictions increasingly characterize clinical decision support tools (DSTs). How can DSTs efficiently explain their complex predictions and support clinicians’ reasoning? This paper investigates this question by exploring biomedical literature as a source of “explanations”.
In Review: CHI 2022
Plan & Talk: Supporting collaborative goal-setting for hospitalized adolescent patients
To increase patient engagement and facilitate patient-provider collaboration, tools that incorporate patients’ goals into medical care plans are needed. However, few studies have explored how hospitalized patients set and share goals to communicate with their caregivers and clinical care teams. Even less is known for how pediatric patients experience sharing their goals during hospitalization. This paper presents a technology probe study to characterize how pediatric patients perceive goal-setting, and how goal-sharing affects their collaboration with their caregivers and clinical care teams. We conducted this study with 13 patient families and 4 clinicians. We found that goals set and shared by pediatric patients foster the patients’ autonomy to participate in care decision-making, reveal the gaps of understanding between patients and caregivers, support the patients emotionally during patient and care team interaction, and convey the patients’ personalities and preferences to the clinical care team. In addition, we recommend design opportunities to support the different ways that patients’ goals can foster high-quality patient care. We also discuss how patients’ goals impact the tension of shared decisional authority between patients and caregivers, and how goals support pediatric patients’ transition to self-care.
Published in CSCW 2021
Conceptualization of Personal Values for Patient-Provider Communication for patients with Multiple Chronic Conditions
Individuals with multiple chronic conditions (MCC) usually face difficulties when making decisions about self-care and priorities because treatments for multiple diseases can conflict with each other and affect patients’ quality of life. For example, an older person might have diabetes and arthritis. While the patient needs to exercise to improve the blood glucose level as a self-care strategy for diabetes, exercise might worsen the condition of arthritis. To improve the care for patients in such circumstances, providers and patients must reach a shared understanding of care priorities. However, those priorities of patients are often withheld from health providers, since patients may not perceive those relevant to their health conditions. We developed an interface prototype to help patients reflect on the connections between their values and self-care strategy, as well as help them manage self-care for multiple chronic conditions (MCC)